6min read • 6 months ago
https://jojotalksmed.wixsite.com/jojotalksmed
Medicine is supposed to be the field of health and healing. The science of healing, restoring life, hope, dreams and longevity.
Something with such objectives should be good in all ramifications, don't you agree?
But the fair answer is No.
Simply, because as much as medicine has saved millions, it has also carried stories that are uncomfortable to tell, stories of people whose pain became the foundation for progress.
Medicine hasn't always been kind to humanity, it holds untold horrors that would make you squirm but when you consider the breakthroughs made, you might just think maybe it was worth it…..but was it?
To embrace current medical advancements is to embrace the reality that much of this biological science was secured through the profound suffering of vulnerable, and often non-consenting individuals.
I recently came across two cases that caught my attention and honestly broke my heart..and one of them begins with women who helped pave the way for modern gynecological fistula repair… women history rarely celebrates, but medicine will never forget. They are often referred to as “The Mothers of Gynecology” but their story is not one of honor, but of pain.
In the mid-19th century, women were plagued with a condition called Vesico-vaginal fistula, a catastrophic complication of child birth where there is an abnormal opening between the bladder and vagina that causes continuous leakage of urine through the vagina. This caused uncontrolled urination, irritation, emotional distress and stigmatization to the affected woman.
Dr James Marion Sims, an American physician recognized to this day for his considerable work of the development of a surgical technique that repaired vesicovaginal fistulas. He invented the modern vaginal speculum (initially fashioned from a bent pewter spoon) and pioneered the use of silver wire for sutures to prevent bacterial infection.
Admirable right? But how exactly did his technique come to be?
Between 1845 and 1945, Dr Sims performed dozens of experimental surgeries on enslaved Black women in Montgomery, Alabama most notably Anarcha, Betsey, and Lucy. It gets even worse, they were operated on without anaesthesia, yeah imagine that..
Anarcha reportedly underwent 30 separate surgeries before he successfully closed the fistula and tears.
These women suffered a great deal under the ministrations of Dr Sims and his justification? - Sims’s justification for operating without anesthesia was a false reason that Black individuals had a higher physiological pain tolerance and weaker nervous systems than white individuals, a bias that served to falsely validate and shield his brutal experimental methods.
In the end, his name was engraved into medical history but behind that history were enslaved Black women.
Women who could not consent.
Women whose bodies were treated as experimental spaces.
Women who endured repeated surgeries without anesthesia because their pain was considered tolerable, or worse, irrelevant.
Their names deserve to be spoken.
Next, I would spotlight the Tuskegee study. I came across this in Medical Ethics class last semester and digging deep, it is simply nerve wracking.
This was a 40 year long study that was conducted to observe the natural history of untreated syphilis, seeing the trend of the disease to the late phase even to the point of death and autopsy.
This study was carried out by the United States Public Health Services and the Centre for Disease Control on 399 men with latent stage syphilis and a control group without syphilis as well.
As part of the study, researchers did not collect informed consent from participants.
Even worse, they also did not offer treatment, even after penicillin was easily available as at 1947 and as a result, by the end of the study in 1972, only 74 of the test subjects were still alive. Of the original 399 men, 28 had died of syphilis, 100 died of related complications, 40 of their wives had been infected, and 19 of their children were born with congenital syphilis.
Their justification?
These researchers reasoned that observing the unchecked destruction of the human body would provide invaluable, irreplaceable physiological data on the disease's ultimate pathology, showing how they valued the data curve above the lives of the men providing it.
The system essentially chose science over their humanity. They were not seen as patients. They were seen as data.
At first glance, stories like Sims’ experiments on enslaved women and the Tuskegee Syphilis Study can feel like distant history, tragic, disturbing, but far removed from the modern world.
Well, I refuse to condemn these stories as just history.
They are reminders of what happens when medicine is allowed to progress without moral boundaries. The real horror is not only what was done but how easily it was justified.
1. Consent Was Absent
One of the strongest ethical pillars in medicine is informed consent — the idea that a person has the right to understand what is being done to their body and agree freely, without pressure or coercion but in both cases, consent was either impossible or intentionally denied.
Enslaved women could not refuse surgery. The Tuskegee men were lied to about their condition and told they were receiving treatment. Without consent, medicine stops being care. It becomes control.
2. Vulnerable People Were Targeted
A repeated pattern in unethical medical history is this: research is rarely carried out on the powerful.
Instead, it is performed on people who cannot fight back.
People who are poor, marginalized, imprisoned or enslaved. People whose voices society already ignores and that is what makes these stories especially painful.
3. The Dehumanization of Black Bodies
There is an uncomfortable truth many people avoid: racism was part of the foundation.
The belief that Black people feel less pain and can endure more suffering. They shaped how decisions were made, how pain was dismissed, and how suffering was normalized.
The idea that Black lives are less valuable and these are not just outdated beliefs and if we are being honest, some of these biases still echo in healthcare today.
4. “The Greater Good” Became an Excuse
The most dangerous phrase in unethical research is often: “It was for science.”
Science without ethics is not progress rather exploitation.
Yes, breakthroughs came and medical knowledge expanded but we must question the price.
If medicine claims to save lives, it cannot be built on the destruction of lives and still call itself healing.
5. The Consequences Were Long-Term
The harm did not end when the surgeries ended. These events planted something deeper: mistrust.
They shaped how Black communities relate to hospitals, doctors, vaccines, and public health interventions.
So sometimes, when people say, “I don’t trust the healthcare system,” they are not being irrational. They are simply remembering and rightfully wary.
It is easy to read these stories and think:
“That could never happen now.”
But the truth is, modern medicine still struggles with:
Unequal treatment
Biased pain management
Poor representation in research
Medical gaslighting
Healthcare inequality
So these stories matter because they remind us what medicine becomes when it stops seeing patients as people.
To wrap up, I’ll ask, Has Medicine achieved greatness? Oh yes, It has.
But Was it worth it?
I leave that to you to decide and let me know in the comments.
Thank you for reading!